Tuesday, January 17, 2017

The Conehead

Who is ready for another long update?! :) 

Well, let's get the medical updates out of the way. In my last post, I mentioned that I would be getting two new biopsies--one for a mass in my left breast, and another of the lymph nodes on my right side. Of course, these had to be done on two separate days at two separate locations (because that's the way my life works, apparently). 

The first biopsy was done via a breast MRI, meaning I had to get an MRI done, then would be pulled out so they could position the needle for the biopsy, put me back in and take MRI images, pull me back out and adjust the needle, etc etc until they were in the right spot. The mass they were trying to biopsy was on the right side of my left breast, but the only way they could access it was to insert the needle on the left side of my breast and go allllllll the way through it to get to the mass. Here's a fun picture to show you what it basically looks like! 

If you've ever had a mammogram, it's basically the same concept in the sense that they mash your boob all the way in the contraption to the point where you think they are trying to squeeze the will to live out of you. 
Although I was mostly numbed up, at one point I did feel the needle (which is really more like a drill) and was easily the most pain I've ever felt in my life, haha. I yelped pretty loudly and the doctor performing the biopsy said, "oh, did you feel that?!" YES, SATAN, I DID, THANK YOU. 



Once I got re-numbed, they were able to finish the procedure, so in total it took about an hour. There was quite a bit of blood when all was said and done, and the nurse assisting let me know I could expect "some bruising." Apparently we have different concepts as to what this meant, because even within a few hours, it began to look like this: 


And by the next day, like this: 


The part that the band-aid is covering is where the needle went in, and the mass they were trying to reach was where the bruise is. 

The next day, I went in for the biopsy of my lymph nodes. This one was much easier, so I was happy the harder one was over, but it was a bit more nerve wracking because I was able to see them do it, whereas the MRI biopsy I couldn't see anything since I was laying face down. For this one, the biopsy was guided through an ultra-sound, so once they located my lymph nodes they were able to take a bunch of samples. I was completely numbed this time and couldn't feel a thing, but each time they would take a sample, there would be a sharp noise, which kind of sounded like when someone snaps a rubber band on you. They took 4 different samples and after that I was done! 

During the same week, I also had an endoscopy performed, which is where they take a camera and go down your throat to look at your GI tract. This was needed to check out my "stress induced" ulcer. While this is a simple procedure, the prep to get me to that point was rough. I couldn't eat or drink anything for 8 hours before, which already made me cranky, but also left me dehydrated and feeling nauseas (mostly from chemo side effects, though). Once I got back to the prep area, the nurse tried to start an IV for the anesthesia but couldn't find a good vein. She made about 4 attempts with no luck. So then she called over another nurse to try who, similarly, had no luck. A THIRD NURSE COMES OVER...at this point they are all simultaneously trying to find a vein in my arms and hands and cannot access one...SO THEY START TRYING TO START THE IV IN MY FOOT. My foot! Like I was some strung out junkie!!!!!! I was basically watching them like this: 



Anyway. Freaking 30 minutes later they finally get one in my arm and put me under anesthesia so they could do the procedure, which took about 30 minutes. 

Results: We got the results of the biopsies back that week (yay!) and it was nice to have the information back so quickly. The mass that was found in my left breast was NOT cancerous, but the samples that they took from my lymph nodes were. This doesn't necessarily change my treatment plan, but it is a good thing that we started chemo right away, because if left untreated, the cancer could have easily spread to somewhere else in my body. 

From the endoscopy, they found that I did have an ulcer (duh) which they took some biopsies of, as well as--wait for it--A HERNIA. 



*How I feel my body talks to me now* 

Anyway. I have a hiatal hernia, which means part of my stomach is pushing up past my chest cavity in to my esophagus, so it basically looks like this: 




I was put on two medications and I haven't had any pain so I guess it means they are working...?! I go back next week to follow up for the biopsy results that they took.


We also met with Dr. O'Lear, my radiologist, before my 2nd chemo. He, along with the rest of my team, is AMAZING. He was extremely helpful and knowledgeable, and took the time to walk us through all of the information. I've been asked quite a few times, "Why will you still need radiation even after you get a double mastectomy?" This is a valid question. As Dr. O'Lear explained to us, if the risk of cancer coming back is higher than 20%, you are recommended to get radiation. In my particular case, I have at least a 40% chance of my cancer coming back without radiation. AKA, it's a no-brainer to get it. I won't begin this treatment until June, and then I will receive radiation 5 times a week for 7 weeks straight. 

Just as I was getting used to my short hair cut, I began to get extremely tender headed around day 12 after my first chemo. My entire head was tingling, and it felt like my scalp had been severely sunburnt. They told me my hair would start to fall out 14-17 days after my first chemo, so I knew it was coming. I wasn't really nervous, nor did I have a huge emotional meltdown like I was expecting to, but I didn't want to be unprepared for when it came out, so I went....WIG SHOPPING! 



I know what you're thinking. Yes, those mannequin heads are what nightmares are made of. 

All of the ladies who worked at this salon were extremely helpful and kind and helped me make the process really fun! Those of you who have known me for a long time know that I LOVE to change my hair, so I thankfully have not really felt any sort of identity crisis when it comes to having to get a few new hair styles. The first one that I picked is (surprisingly) basically an identical copy of the cut and color that I just had and I love it! 

For the second one, I decided I wanted to go back to brunette!  

Last but not least, I have mom's old wig :) 

Yes that's a wig, yes she is rocking it.

By the time my hair started actually falling out, it was pretty annoying. I now know what my dogs feel like every time they shed. So what do you do when your hair is coming out by the handful?! You enlist your trusty roomies to have a head shaving party with you, obviously!

It begins: 


The comb-over:

The "Troll":

The Mohawk:

The Mustache:

Aaron: "I need some hair for my mustache"
Layne: "Just pull a piece out of her head!"
*Pulls piece out of my head* 
Me: *Rolls eyes*

The cul-de-sac:

The Creeper:

The Rat Tail:

And, last but not least, the final product:


We had lots of fun during the head-shaving party, and I am happy to say the only tears that were shed were tears of laughter. Layne kept telling me I look like Sinead O'Connor:


But my biggest concern was that I was going to look like a Conehead, and not just because this is how I've been eating lately:



Biggest upside to having no hair? You can get ready to go anywhere literally within 5 minutes. Biggest downside to having no hair? Your head is cold all. the. time. I have two beanies from LoveYourMelon that I am obsessed with--so warm and cozy! Not sure what I'll do when it starts getting hot again (so, like next week), but that is a problem for future Kristen to worry about. 


Last but not least, I have to give the biggest shout-out to everyone who came out for the spin class my Big put on for me. I think I can speak for everyone who attended when I say that 3 days later, we are all feeling like this: 


Although it was SO much fun, I do not think I have ever been this sore in my life. Jill Mauthe, you are one kick-ass spin instructor, and you had all of us busting our booties while smiling and laughing to an epic playlist . Here's a few pictures from the event!



Big/Little sandwich! 

This pretty girl and her hubby are having a BOY!!!!! #babyGibney

Sean hurt his knee so couldn't do the spin class, but still came out to support! <3

I want her shirt.

Our relationship summed up in one picture


miss our Alpha Phi Exec days! <3 

While I am still doing well overall, this second chemo was harder on me than the first was, which leads me to believe each one will be harder than the next. However, it still is not as bad as I had expected it to be, and I can deal with feeling like crap for a few days. The biggest side effects this time was nausea (and some puking), headaches (i usually just put an ice pack on my head and it helps) and feeling achy/sore from the Neulasta shot which makes the bone marrow come out of my bones. All part of the process, I guess! 

As always, thank you for your support, kind words, and good vibes! Love you all! 

xoxo,
Kristen





3 comments :

  1. YOU ROCK, sweet girl!!! Strong, Warrior, and Gorgeous!!!

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  2. Sweet Kristen-Love you and your strength in the fight. You've got your dukes up and we are all with you. XO

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  3. You are definitely an inspiration to many people. It is hard to imagine going through it, but you make the experience relatable enough to let women know that they will be okay and what to expect. The hairstyles were the best part. Thank you for the procedure walk-through. It is a great way for first-timers to know what to expect.

    Kacey @ Glendale MRI

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